About MND
MND is a progressive and life-limiting condition, meaning it will get worse over time. There are different types of MND and so each person will experience their own speed and pattern of muscle weakness.
Find an MND Advisor
We employ support advisors to provide a free, specialised support and advisory service throughout New Zealand. We work alongside your healthcare team to improve outcomes and help you remain independent for as long as possible.
After your diagnosis
A diagnosis of MND can feel overwhelming. You, your family, and everyone close to you will need time to adjust. When you're ready, here's Information on what to do next.
Join a group
There are several ways to connect with others affected by MND, both in New Zealand and internationally. There are in-person support groups run by volunteers, and an active Facebook support page.
Living with MND
Being informed about the disease will enable you to plan your life as best as you can. When you're ready, here's practical information on topics such as fatigue, equipment, and voice banking.
MND Registry
MND NZ established the MND Registry with the goal of encouraging research. By allowing us to collect your data your details will become part of the big picture, helping researchers focus their knowledge and expertise.
We're here for you
Motor Neurone Disease New Zealand is a charity built on the ethos of helping people affected by motor neurone disease – and it remains the cornerstone of all that we do today.
Our vision is a world where everyone who faces motor neurone disease (MND) is empowered to live with dignity and hope. We champion a future where MND is treated, cured or prevented.
Until then, we are dedicated to making time count for people affected by MND by offering personal support; advocacy; education; and supporting research.
Funded by you
Motor Neurone Disease New Zealand is the only charity providing support, advocacy, education to people impacted by this devastating disease in Aotearoa.
We rely on the community's support to ensure we can continue providing our life changing services, at no cost to them.
Every donation offers solace, empowerment, compassion and care.
Key supporters
Aotearoa Gaming Trust
Fulton Hogan
Jubilee Trust
Lindsay Foundation
Lottery Grants Board
Pub Charity
The Lion Foundation
News & events
MND NZ Reappointed as Official Charity Partner for 2026 NZ Masters Games
We’re proud to share that Motor Neurone Disease NZ has once again been named the official charity partner…
DSS changes bring choice and control for carersÂ
Minister Louise Upston has announced major changes to the Disability Support System (DSS), restoring flexibility and control…
New Director announced for the Centre for Brain Research
Motor Neurone Disease NZ welcomes the appointment of Professor Hanneke Hulst as the next Director of the…
Genetics Study: New Zealand Motor Neurone Disease Family Study
A research initiative led by Associate Professor Emma Scotter (Centre for Brain Research, The University of Auckland),…
MND Insight Research 2025: Highlights & What’s Next
The 2025 MND Insight Research study — formerly known as the MND Insight Survey — has reached…
Staff Spotlight: Meet Laura — where purpose meets paws and powerful stories
Behind every campaign, story, and fundraiser at Motor Neurone Disease NZ is a team of people working…
From diagnosis to determination: Wayne’s journey with MND
Wayne Richards is one of many New Zealanders living with motor neurone disease (MND) — and one…
MND Action Month 2025: We tipped, we poured, we made time count
Buckets were tipped. Brews were poured. But MND Action Month 2025 was more than just fundraising —…
From the field to the heart — Hurricanes Alumni stand for MND
The Hurricanes Alumni Foundation Trust recently came together for a special fundraising dinner — a night of…